Five years ago I was in hell…parenting hell. You’re probably wondering how that’s possible but I can tell you with 100% certainty that the temper tantrum your child threw at the grocery store over the candy bar you told them they couldn’t have doesn’t even come close to what watching your child be rolled away on a gurney towards the OR feels like. Maybe at the grocery store you are embarrassed, angry and ready to lose you’re damn mind but it doesn’t compare to the downright devastating and scared feelings of scenario #2, although the ready to lose your damn mind might be a close similarity at times.
Five years ago scenario #2 happened. I watched my sweet 5 month old baby boy be rolled away towards the OR to fix the heart defect that we had found out about when I was 6 months pregnant. Constantly talking about the possibility of surgery and then actually scheduling the surgery doesn’t prepare you for the feelings actual surgery day brings. As a parent you want nothing more then to be able to protect your child, fix their problems and take away their pain and in the hours I sat in the waiting room, next to his bedside and fighting with the pain management team I felt completely helpless. That feeling of absolute helplessness is why I relate this to hell. There was nothing I could do but trust his team of doctors and make my voice heard when things didn’t seem right. I am happy to say hell lasted about two days, when he finally started to take a bottle again there was a light at the end of the long dark tunnel from a few days earlier.
Now I look back and I can still feel those feelings on days like today but now five years later there is so much more to my sons story. He has been through so much since his surgery with the additional specialists we had to add to his team and the two additional times he had to go back in the OR (non heart related). Through it all he has stayed strong and in turn he has given me more strength then I thought I could carry. He has taken a love for things like collecting Hot Wheels for Toys for Tots and in those proud moments I’m reminded that the parenting hell I was once in only lasts for a small time and is replaced by these amazing moments.
So as a mom who has lived through this form of hell I am here to tell you to hang on, speak up and pull strength from the amazing warrior in you’re life. At the end of the long dark tunnel there will be some form of peace and I hope it’s the kind that brings you tears of joy and a smile.